Forgot your password?

Latest The Saoirse Foundation Releases

RSS Feed

“You Will Never Walk Alone” is the message being sent across Ireland today as Liverpool Legend Jamie Carragher & his Charity “the 23 Foundation” team up with The Saoirse Foundation, ...

The BUMBLEance will facilitate scheduled hospital/ treatment visits for children that meet set medical criteria Dublin 6th September: BUMBLEance, the World’s 1st interactive children’s ambulance which was revealed today for ...

The Town of Killarney is buzzing with excitement this week with the announcement of the first full distance marathon to be held in the town on the 20th July 2013. ...

The National Children’s Charity, Bee For Battens, in partnership with Oslo GAA, Norway have entered into the history books of Croke Park, by having the charity’s distinctive bumble bee logo ...

PRESS OFFICE

Tony Heffernan
Founder & CEO
Tel: 083 0044444
Email: news(at)saoirsefoundation.com
Emergency No.: 0872359602

ADDRESS

Castledrum
Castlemaine
Co. Kerry
Ireland
Tel: 0830044444
Email: news(at)saoirsefoundation.com

ABOUT THE SAOIRSE FOUNDATION

The Saoirse Foundation has a simple moto, everything we do must "MAKE POSITIVE LIFE IMPACTS FOR SICK CHILDREN"

To do this, we ensure we motivate our people, our board and the public & business communities so as create better awareness, while ensuring that over 92% of everything we raise goes to the cause.

About Us!

Following the diagnosis of their children, Saoirse & Liam with the Ultra Rare and fatal condition Batten's Disease, Tony and Mary Heffernan decided to set up the Saoirse Foundation / Bee For Battens initally to provide parents, families and all those affected by Battens Disease on the island of Ireland with a support, networking, and a credible source of information. The Charity also became a member of a new global initiative between Patient Support & Research organization's worldwide.

Now The Charity is building Liam's Lodge, Ireland’s first National Children's Respite Centre for children affected by rare diseases and genetic disorders and their families.

The centre will be built in the scenic location of Blennerville in County Kerry, on the outskirts of Tralee Town

Liam’s Lodge will provide full respite care services in custom built family units, where loved ones with rare and genetic disorders will be provided with the care they need, while the child’s parents and siblings are given the chance to get some much needed rest and family time.

The centre will provide families with a full week’s break with comprehensive care plans pre-agreed for each child, delivered by highly trained medical and care personnel.

With ten units or ‘homes away from homes’ in phase one, Liam’s Lodge will cater for 520 families each year initially. A further two phases of similar size will be added later, allowing Liam’s Lodge cater for over 1,560 families a year. 

Up to eight per cent of Irish people are affected by rare diseases. About 70 per cent are children, from which 30 per cent will die before reaching their fifth birthday. With potentially over 200,000 children affected by rare disease in Ireland, with no designated centre for rare and genetic disorders, until now!

The centre is also partnering with third level medical university & colleges to provide accredited training courses in Rare and genetic disorders.

 

SHARE OUR USER PAGE

TWITTER @BeeForBattens

Please suppourt our #textFUND campaign to purchase a new childrens @BUMBLEance http://t.co/CGxsshOVtm just text 'BUZZ' to 50300 & RT. Thanks
BeeForBattens 23 Apr 20:47

We are looking for volunteers in Tralee on the 2/3 may next! Anyone up for it, should be some fun and for a great cause. Just tweet us...
BeeForBattens 23 Apr 15:57

@Bigrig480 not great Beian. Not great.
BeeForBattens 23 Apr 12:51

Our #LittleLiamo. In a deep sleep, he is not doing too great overall but glad he is resting now. http://t.co/JXt98SHZHw
BeeForBattens 23 Apr 9:51

TWITTER @LiamsLodge

We are looking for volunteers in Tralee on the 2/3 may next! Anyone up for it, should be some fun and for a great cause. Just tweet us...
LiamsLodge 23 Apr 15:57

Want to volunteer for our children's charity! We need a few volunteers in Kerry on May 2/3 Email info@bumbleance.com for details!
LiamsLodge 23 Apr 15:48

RT @mrbryanrussell Loads of happy painted faces at @BallyseedyGardn enjoying the bouncy castle & teddy bear picnic for @LiamsLodge today h…
LiamsLodge 22 Apr 20:49

RT @BUMBLEance After #ddirl lets #textFUND to help sick children: text 'BUZZ ' to 50300 & we can buy a new kids ambulance RT http://t.co/…
LiamsLodge 20 Apr 22:33

TWITTER @Saoirse_Fdn

Please suppourt our #textFUND campaign to purchase a new childrens @BUMBLEance http://t.co/XBGo4ODyyV just text 'BUZZ' to 50300 & RT. Thanks
Saoirse_Fdn 23 Apr 20:47

We are looking for volunteers in Tralee on the 2/3 may next! Anyone up for it, should be some fun and for a great cause. Just tweet us...
Saoirse_Fdn 23 Apr 15:57

Want to volunteer for our children's charity! We need a few volunteers in Kerry on May 2/3 Email info@bumbleance.com for details!
Saoirse_Fdn 23 Apr 15:48

RT @BUMBLEance After #ddirl lets #textFUND to help sick children: text 'BUZZ ' to 50300 & we can buy a new kids ambulance RT http://t.co/…
Saoirse_Fdn 20 Apr 22:33

FACEBOOK

FACEBOOK

FACEBOOK