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“You Will Never Walk Alone” is the message being sent across Ireland today as Liverpool Legend Jamie Carragher & his Charity “the 23 Foundation” team up with The Saoirse Foundation, ...

The BUMBLEance will facilitate scheduled hospital/ treatment visits for children that meet set medical criteria Dublin 6th September: BUMBLEance, the World’s 1st interactive children’s ambulance which was revealed today for ...

The Town of Killarney is buzzing with excitement this week with the announcement of the first full distance marathon to be held in the town on the 20th July 2013. ...

The National Children’s Charity, Bee For Battens, in partnership with Oslo GAA, Norway have entered into the history books of Croke Park, by having the charity’s distinctive bumble bee logo ...

PRESS OFFICE

Tony Heffernan
Founder & CEO
Tel: 083 0044444
Email: news(at)saoirsefoundation.com
Emergency No.: 0872359602

ADDRESS

Castledrum
Castlemaine
Co. Kerry
Ireland
Tel: 0830044444
Email: news(at)saoirsefoundation.com

ABOUT THE SAOIRSE FOUNDATION

The Saoirse Foundation has a simple moto, everything we do must "MAKE POSITIVE LIFE IMPACTS FOR SICK CHILDREN"

To do this, we ensure we motivate our people, our board and the public & business communities so as create better awareness, while ensuring that over 92% of everything we raise goes to the cause.

About Us!

Following the diagnosis of their children, Saoirse & Liam with the Ultra Rare and fatal condition Batten's Disease, Tony and Mary Heffernan decided to set up the Saoirse Foundation / Bee For Battens initally to provide parents, families and all those affected by Battens Disease on the island of Ireland with a support, networking, and a credible source of information. The Charity also became a member of a new global initiative between Patient Support & Research organization's worldwide.

Now The Charity is building Liam's Lodge, Ireland’s first National Children's Respite Centre for children affected by rare diseases and genetic disorders and their families.

The centre will be built in the scenic location of Blennerville in County Kerry, on the outskirts of Tralee Town

Liam’s Lodge will provide full respite care services in custom built family units, where loved ones with rare and genetic disorders will be provided with the care they need, while the child’s parents and siblings are given the chance to get some much needed rest and family time.

The centre will provide families with a full week’s break with comprehensive care plans pre-agreed for each child, delivered by highly trained medical and care personnel.

With ten units or ‘homes away from homes’ in phase one, Liam’s Lodge will cater for 520 families each year initially. A further two phases of similar size will be added later, allowing Liam’s Lodge cater for over 1,560 families a year. 

Up to eight per cent of Irish people are affected by rare diseases. About 70 per cent are children, from which 30 per cent will die before reaching their fifth birthday. With potentially over 200,000 children affected by rare disease in Ireland, with no designated centre for rare and genetic disorders, until now!

The centre is also partnering with third level medical university & colleges to provide accredited training courses in Rare and genetic disorders.

 

SHARE OUR USER PAGE

TWITTER @BeeForBattens

Another day done. Just arrived Home Sweet Home after being busy as a bee pursuing positive impacts for sick children via @Saoirse_fdn
BeeForBattens 15 Apr 23:23

Facing into another busy afternoon of #MakingPositiveLifeImpactsForSickChildren if we do as well today as yesterday I will be thrilled!
BeeForBattens 15 Apr 12:07

Facing into another busy afternoon of #MakingPositiveLifeImpactsForSickChildren it we do as well today as yesterday I will be thrilled!
BeeForBattens 15 Apr 12:05

Just have say that today was a SIGNIFICANT day for the @Saoirse_fdn #BUMBLEance & @LiamsLodge. All the work sweat & more work was worth it!
BeeForBattens 14 Apr 22:41

TWITTER @LiamsLodge

@LouiseCrowley2 @BeeForBattens @BUMBLEance @Saoirse_Fdn yep VERY
LiamsLodge 14 Apr 23:02

RT @BeeForBattens Just have say that today was a SIGNIFICANT day for the @Saoirse_fdn #BUMBLEance & @LiamsLodge. All the work sweat & mor…
LiamsLodge 14 Apr 22:47

@Worldwellyrun @BUMBLEance @GlenfleskGAA excellent. We wil try and support them as they have supported our @BeeForBattens previously!
LiamsLodge 12 Apr 21:20

RT @PCD_07 Dingle Women's Mini Marathon 17th May 2014 - Proceeds to @PCD_07, @LiamsLodge & @NBCRIIreland #pcdabú
LiamsLodge 12 Apr 19:21

TWITTER @Saoirse_Fdn

RT @BUMBLEance currently on our 2nd run today. Arriving in #Donegal soon with a very sick but smiling young man! This is how we spend your…
Saoirse_Fdn 14 Apr 22:19

RT @BuzzLMK @elemcsherry @Limerick2014 @BUMBLEance @BehindDScenes - @BUMBLEance let us know how u get on. #Limerick =City of Culture & com…
Saoirse_Fdn 14 Apr 22:19

RT @BUMBLEance And the @ManorWestRetail Park charity of the year = #BUMBLEance thanks to Derek Rusk & all the team for choosing us! http:/…
Saoirse_Fdn 14 Apr 22:19

RT @AngeCMJ Fancy walking through fire💥raising money to keep @BUMBLEance transporting very sick children across the country👣💥👣💥👣 http://t.…
Saoirse_Fdn 14 Apr 22:05

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